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Torrington mother fights for drug to treat her sons with Duchenne muscular dystrophy

TORRINGTON – Both of Melanie Kelly’s sons are in wheelchairs, robbed of their ability to walk, sit-up and bathe themselves. They suffer from Duchenn...
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TORRINGTON - Both of Melanie Kelly's sons are in wheelchairs, robbed of their ability to walk, sit-up and bathe themselves.

They suffer from Duchenne muscular dystrophy, a life-threatening genetic disease that mainly affects boys.

"It's been extremely challenging. They rely on us for all of their personal care at this point, and you're watching your children slowly, progressively decline in their abilities," says the Torrington mother, as she looks at 19-year-old Jacob and 15-year-old Liam, who also has autism and epilepsy.

Kelly has joined a group of parents pushing for FDA approval of an experimental drug called eteplirsen, currently in clinical trials, that they believe can help these boys.

Click here to read the entire column from the Hartford Courant.